01
Share Experiences
Speak openly about your own journey in a supportive environment.
Where your voice is heard
Rhode Island Epilepsy
Community Support
A safe, welcoming outlet where people can share experiences, exchange knowledge, join meaningful conversations, and help shape what comes next.
See How It WorksSupport Group MeetingsMondays · Time and access details coming soon
Epilepsy Story EventNovember 29, 2026
Our Purpose
A Safe Haven
for Every Voice
The group serves as an outlet for clients—a community where lived experience is respected and every contribution matters.
02
Exchange Knowledge
Learn from the insight and experience found throughout the community.
03
Join the Conversation
Take part in discussions, ask questions, and offer meaningful feedback.
Our Promise
You Will Be Taken Seriously
Hosts bring presented topics, then use participant feedback to guide the conversation. Whatever you have to share will be received without judgment—not dismissed or swept aside.
Gathered Feedback
Help Shape
the Next Meeting
Everyone should have a way to contribute—even when speaking out loud feels difficult.
Surveys
Share structured feedback about meetings, discussions, and community needs.
Requested Topics
Submit a topic you would like the group to address at the next meeting.
Anonymous Entry
Raise a topic or issue privately when you want to be heard without speaking publicly.
After sharing once or twice and feeling included, a hesitant participant may feel more comfortable opening up as time passes.
Continuous Improvement
The PDSA Cycle
A participant-led process that keeps each meeting responsive, useful, and connected to what the community needs.
- P01
Plan
Begin with introductions and create room for every person.
- D02
Do
Collect and record the information sought and exchanged.
- S03
Study
Identify the subjects that need further discussion.
- A04
Act
Design the outline for the next meeting’s presented topic.
Coming Before November 29
Support Group Podcast
A new conversation centered on epilepsy, community support, and making space for every voice. Episode and listening details will be announced before the Epilepsy Story Event.
Ask About the PodcastGoogle Slides Presentation
Support Group Overview
Review the original presentation covering the group’s purpose, feedback process, and PDSA cycle.
Open Presentation