September 15, 2022
A warrior has to cope. How does one do it?
Everyone healthy or not needed a method of coping. What gets me through the day is my faith. In my childhood my late grandmother, may she rest in…
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The Blog
Personal stories and open conversations about epilepsy, stigma, mental health, healthcare access, housing, advocacy, and the social conditions that shape quality of life.
September 15, 2022
Epilepsy and the psychology to it
Since emotions are such a factor in epilepsy, in my teens I wanted to learn more about the mind. How does it work, and what's different about mine.…
Read More →September 15, 2022
It’s not my fault, why feel guilty?
It goes without saying that caregiving for a loved one with epilepsy is not easy. It's greatly appreciated, just a couple things need to be remembered. Hard at…
Read More →September 12, 2022
It has to be done: post seizure catch-up
All the errands that get postponed due to a surprise seizure of any type still need to be fulfilled. Since I had multiple the day before I went…
Read More →September 12, 2022
Wake and shake: 3 before 8
First off this was on Saturday 9/10. I had a busy day starting very early. First off focal and myoclonics through the day. It didn't make too much…
Read More →September 9, 2022
Minimization: I’m not crying wolf
There's all types of stigma tied to epilepsy, and one of those ignorant assumptions is that things are exaggerated. Questioning whether living with epilepsy is really that bad.…
Read More →September 9, 2022
Stigma beliefs: loud and wrong.
There's a quote that fits all chronic illnesses and conditions, most definitely epilepsy. "you don't get it until you get it". Years of stereotypes and ignorant assumptions has…
Read More →September 7, 2022
Is it better to have loved and lost? An unsaid debate.
The classic phrase "is it better to loved and lost than to never have loved at all?" can fit lots of things metaphorically. As far as epilepsy goes,…
Read More →September 7, 2022
Epilepsy is treatable, but not curable, straight from the horses mouth.
For every part of the body there's a different doctor specialist. For epilepsy and other brain related issues a neurologist is the doctor on call. Seizures have been…
Read More →September 4, 2022
On an Off Day
I do things best when I plan it out. Some days I can wake up with a full agenda and I don't feel like I have all my…
Read More →September 3, 2022
The ultimate question: Why me?
Warriors come in all ages, shapes, and sizes. Everyone's case is different so what treatment and what types will vary. Important to know, but what is the initial…
Read More →September 2, 2022
A song can mean many things, everyone has an anthem.
Just listening to music today and what caught my ear was Believer: Imagine Dragons. It felt like a good example of how I feel about my epilepsy."Pain, let…
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